You are seeing this message because your Web browser does not support basic Web standards. Find out more about why this message is appearing and what you can do to make your experience on this site better.


ABOUT ARCHIVES
Advanced Search

Welcome   | My Account | E-mail Alerts | Access Rights | Sign In


  Vol. 156 No. 13, 8 JULY 1996 TABLE OF CONTENTS
  Archives
  •  Online Features
  ORIGINAL INVESTIGATIONS
 This Article
 •References
 •Full text PDF
 •Send to a friend
 • Save in My Folder
 •Save to citation manager
 •Permissions
 Citing Articles
 •Citation map
 •Citing articles on HighWire
 •Contact me when this article is cited
 Related Content
 •Similar articles in this journal
 Social Bookmarking
  Add to CiteULike Add to Connotea Add to Del.icio.us Add to Digg Add to Reddit Add to Technorati Add to Twitter What's this?

What Role Do Patients Wish to Play in Treatment Decision Making?

Raisa B. Deber, PhD; Nancy Kraetschmer, MSc; Jane Irvine, DPhil

Arch Intern Med. 1996;156(13):1414-1420.


Abstract

Background
Although current ideology suggests patients should be active participants in decision making about their care, the literature suggests that patients wish to be informed but not involved.

Objective
To test the hypothesis that most patients want their physicians to take the responsibility for problem solving (PS, identifying the one right answer), but that many want to be involved in decision-making (DM, selecting the most desired bundle of outcomes) tasks.

Methods
Survey responses from 300 patients undergoing angiogram at a Toronto, Ontario, hospital were analyzed (response rate, 72%). Survey items included scales to measure desire for information and participation, including Autonomy Preference Index, the Krantz Health Opinion Survey, and the Deber-Kraetschmer Problem-Solving Decision-Making Scale measured on a scale from 1 (doctor only) to 5 (patient only).

Results
Patients had a relatively high desire for information. On the Problem-Solving Decision-Making Scale, they overwhelmingly wished the PS tasks to be performed by or shared with the physician (98.4% of the 12 PS scores are between 1 and 3), but wanted to be involved in DM (78% of the 6 DM scores are between 3 and 5). Preference for handing over control to the physician was significantly greater for the vignette involving potential mortality (chest pain) than for the vignettes involving mainly morbidity (urinary problems) or quality of life (fertility).

Conclusions
Although patients do not wish to be involved in PS tasks, few wish to hand over DM control to their physician. These findings suggest 2 major roles for clinicians—assisting patients in PS to structure choices and supporting them in making often difficult decisions.

Arch Intern Med. 1996;156:1414-1420



Author Affiliations

From the Departments of Health Administration (Dr Deber and Ms Kraetschmer) and Psychiatry (Dr Irvine), University of Toronto, Toronto, Ontario.



Add to CiteULike CiteULike   Add to Connotea Connotea   Add to Del.icio.us Del.icio.us   Add to Digg Digg   Add to Reddit Reddit   Add to Technorati Technorati   Add to Twitter Twitter     What's this?

THIS ARTICLE HAS BEEN CITED BY OTHER ARTICLES

Patient Decision Aids for Prostate Cancer Treatment: A Systematic Review of the Literature
Lin et al.
CA Cancer J Clin 2009;59:379-390.
ABSTRACT | FULL TEXT  

Health Literacy and Health Actions: A Review and a Framework From Health Psychology
von Wagner et al.
Health Educ Behav 2009;36:860-877.
ABSTRACT  

Factors Affecting Willingness to Undergo Carpal Tunnel Release
Gong et al.
JBJS 2009;91:2130-2136.
ABSTRACT | FULL TEXT  

Under what conditions do patients want to be informed about their risk of a complication? A vignette study
Janssen et al.
J. Med. Ethics 2009;35:276-282.
ABSTRACT | FULL TEXT  

Preference Assessment of Recruitment into a Randomized Trial for Adolescent Idiopathic Scoliosis
Dolan et al.
JBJS 2008;90:2594-2605.
ABSTRACT | FULL TEXT  

"Surgery Is Certainly One Good Option": Quality and Time-Efficiency of Informed Decision-Making in Surgery
Braddock et al.
JBJS 2008;90:1830-1838.
ABSTRACT | FULL TEXT  

The Impact of Individualized Evidence-Based Decision Support on Aneurysm Patients' Decision Making, Ideals of Autonomy, and Quality of Life
Stiggelbout et al.
Med Decis Making 2008;28:751-762.
ABSTRACT  

Continuity-Structured Clinical Observations: Assessing the Multiple-Observer Evaluation in a Pediatric Resident Continuity Clinic
Zimmer et al.
Pediatrics 2008;121:e1633-e1645.
ABSTRACT | FULL TEXT  

Improving Hypertension Control in Diabetes Mellitus: The Effects of Collaborative and Proactive Health Communication
Naik et al.
Circulation 2008;117:1361-1368.
ABSTRACT | FULL TEXT  

Does Physician Communication Influence Older Patients' Diabetes Self-Management and Glycemic Control? Results From the Health and Retirement Study (HRS)
Heisler et al.
Journals of Gerontology Series A: Biological Sciences and Medical Sciences 2007;62:1435-1442.
ABSTRACT | FULL TEXT  

Instruments for Evaluating Shared Medical Decision Making: A Structured Literature Review
Dy
Med Care Res Rev 2007;64:623-649.
ABSTRACT  

Patient Knowledge of Coronary Risk Profile Improves the Effectiveness of Dyslipidemia Therapy: The CHECK-UP Study: A Randomized Controlled Trial
Grover et al.
Arch Intern Med 2007;167:2296-2303.
ABSTRACT | FULL TEXT  

Can Computerized Decision Support Help Patients Make Complex Treatment Decisions? A Randomized Controlled Trial of an Individualized Menopause Decision Aid
Col et al.
Med Decis Making 2007;27:585-598.
ABSTRACT  

Are Patient Decision Aids the Best Way to Improve Clinical Decision Making? Report of the IPDAS Symposium
Holmes-Rovner et al.
Med Decis Making 2007;27:599-608.
ABSTRACT  

Communicating the Uncertainty of Harms and Benefits of Medical Interventions
Politi et al.
Med Decis Making 2007;27:681-695.
ABSTRACT  

Participation in Medical Decision Making: The Patients' Perspective
Fraenkel and McGraw
Med Decis Making 2007;27:533-538.
ABSTRACT  

Shared Decision Making in the Medical Encounter: Are We All Talking about the Same Thing?
Moumjid et al.
Med Decis Making 2007;27:539-546.
ABSTRACT  

An Inexplicable Bond
Hart
Arch Surg 2007;142:704-707.
FULL TEXT  

Doctors' and Patients' Preferences for Participation and Treatment in Curative Prostate Cancer Radiotherapy
Stalmeier et al.
JCO 2007;25:3096-3100.
ABSTRACT | FULL TEXT  

A risk worth taking
Battersby
Chronic Illness 2006;2:265-269.
 

Do Patients With Localized Prostate Cancer Treatment Really Want More Aggressive Treatment?
van Tol-Geerdink et al.
JCO 2006;24:4581-4586.
ABSTRACT | FULL TEXT  

Decision Making in Pediatric Oncology: Who Should Take the Lead? The Decisional Priority in Pediatric Oncology Model
Whitney et al.
JCO 2006;24:160-165.
ABSTRACT | FULL TEXT  

Rochester Participatory Decision-Making Scale (RPAD): Reliability and Validity
Shields et al.
Ann Fam Med 2005;3:436-442.
ABSTRACT | FULL TEXT  

Promoting Informed Choice: Transforming Health Care To Dispense Knowledge for Decision Making
Woolf et al.
ANN INTERN MED 2005;143:293-300.
ABSTRACT | FULL TEXT  

Can Patients Interpret Health Information? An Assessment of the Medical Data Interpretation Test
Schwartz et al.
Med Decis Making 2005;25:290-300.
ABSTRACT  

Decisional role preferences, risk knowledge and information interests in patients with multiple sclerosis
Heesen et al.
Mult Scler 2004;10:643-650.
ABSTRACT  

Information and Participation Preferences of Dental Patients
Schouten et al.
JDR 2004;83:961-965.
ABSTRACT | FULL TEXT  

Randomized Trial of a Shared Decision-Making Intervention Consisting of Trade-Offs and Individualized Treatment Information for BRCA1/2 Mutation Carriers
van Roosmalen et al.
JCO 2004;22:3293-3301.
ABSTRACT | FULL TEXT  

Patient-Physician Concordance: Preferences, Perceptions, and Factors Influencing the Breast Cancer Surgical Decision
Janz et al.
JCO 2004;22:3091-3098.
ABSTRACT | FULL TEXT  

The Moving Target: A Qualitative Study of Elderly Patients' Decision-Making Regarding Total Joint Replacement Surgery
Clark et al.
JBJS 2004;86:1366-1374.
ABSTRACT | FULL TEXT  

Modeling Patients' Acceptance of Provider-delivered E-health
Wilson and Lankton
J. Am. Med. Inform. Assoc. 2004;11:241-248.
ABSTRACT | FULL TEXT  

Diagnostic and Treatment Decisions in US Healthcare
Kaplan et al.
J Health Psychol 2004;9:29-40.
ABSTRACT  

Gender Differences in Health Information Needs and Decisional Preferences in Patients Recovering From an Acute Ischemic Coronary Event
Stewart et al.
Psychosom. Med. 2004;66:42-48.
ABSTRACT | FULL TEXT  

Rethinking quality in the context of persons with disability
LAWTHERS et al.
Int J Qual Health Care 2003;15:287-299.
ABSTRACT | FULL TEXT  

A New Model of Medical Decisions: Exploring the Limits of Shared Decision Making
Whitney
Med Decis Making 2003;23:275-280.
ABSTRACT  

Helping Patients Make Informed Choices: A Randomized Trial of a Decision Aid for Adjuvant Chemotherapy in Lymph Node-Negative Breast Cancer
Whelan et al.
JNCI J Natl Cancer Inst 2003;95:581-587.
ABSTRACT | FULL TEXT  

What do patients value in their hospital care? An empirical perspective on autonomy centred bioethics
Joffe et al.
J. Med. Ethics 2003;29:103-108.
ABSTRACT | FULL TEXT  

The Role of Physicians' Recommendations in Medical Treatment Decisions
Gurmankin et al.
Med Decis Making 2002;22:262-271.
ABSTRACT  

"What Should I Do, Doc?": Some Psychologic Benefits of Physician Recommendations
Ubel
Arch Intern Med 2002;162:977-980.
FULL TEXT  

Treatment Decision Making in Early-Stage Breast Cancer: Should Surgeons Match Patients' Desired Level of Involvement?
Keating et al.
JCO 2002;20:1473-1479.
ABSTRACT | FULL TEXT  

Clinical expertise in the era of evidence-based medicine and patient choice
Haynes et al.
Evid. Based Med. 2002;7:36-38.
FULL TEXT  

Oral Antihyperglycemic Therapy for Type 2 Diabetes: Clinical Applications
Holmboe
JAMA 2002;287:373-376.
ABSTRACT | FULL TEXT  

Health Decision Aids To Facilitate Shared Decision Making in Office Practice
Barry
ANN INTERN MED 2002;136:127-135.
ABSTRACT | FULL TEXT  

Enhancing Physician-Patient Communication
Lee et al.
ASH Education Book 2002;2002:464-483.
ABSTRACT | FULL TEXT  

Variability in patient preferences for participating in medical decision making: implication for the use of decision support tools
Robinson and Thomson
Qual Saf Health Care 2001;10:i34-38.
ABSTRACT | FULL TEXT  

How Much Information About Adverse Effects of Medication Do Patients Want From Physicians?
Ziegler et al.
Arch Intern Med 2001;161:706-713.
ABSTRACT | FULL TEXT  

Do Patients Want Control over their Own Health Care? A Review of Measures, Findings, and Research Issues
Auerbach
J Health Psychol 2001;6:191-203.
ABSTRACT  

Patient preferences for autonomy in decision making in asthma management
Adams et al.
Thorax 2001;56:126-132.
ABSTRACT | FULL TEXT  

Helping Patients Integrate Research Evidence
Jager et al.
JAMA 2000;284:2594-2595.
FULL TEXT  

Clinical Factors That Influence Patients' Desire for Participation in Decisions About Illness
Mansell et al.
Arch Intern Med 2000;160:2991-2996.
ABSTRACT | FULL TEXT  

Cardiopulmonary Resuscitation Preferences in Dutch Community-dwelling and Hospitalized Elderly People: An Interaction between Gender and Quality of Life
van Mil et al.
Med Decis Making 2000;20:423-429.
ABSTRACT  

An entrustment model of consent for surgical treatment of life-threatening illness: Perspective of patients requiring esophagectomy
McKneally and Martin
J. Thorac. Cardiovasc. Surg. 2000;120:264-269.
ABSTRACT | FULL TEXT  

In reply
Feldman-Stewart and Brundage
Med Decis Making 2000;20:356-356.
 

How Should Physicians Involve Patients in Medical Decisions?
Gates et al.
JAMA 2000;283:2390-2392.
FULL TEXT  

Shared decision making and non-directiveness in genetic counselling
Elwyn et al.
J. Med. Genet. 2000;37:135-138.
FULL TEXT  

Interpretive Review : Feasibility and Effects of Decision Aids
Molenaar et al.
Med Decis Making 2000;20:112-127.
ABSTRACT  

Hospital Informed Consent for Procedure Forms: Facilitating Quality Patient-Physician Interaction
Bottrell et al.
Arch Surg 2000;135:26-33.
ABSTRACT | FULL TEXT  

Shared Vision: Concordance Among Fathers, Mothers, and Pediatricians About Unmet Needs of Children With Chronic Health Conditions
Perrin et al.
Pediatrics 2000;105:277-285.
ABSTRACT | FULL TEXT  

Informed Decision Making in Outpatient Practice: Time to Get Back to Basics
Braddock III et al.
JAMA 1999;282:2313-2320.
ABSTRACT | FULL TEXT  

Involving Patients in Medical Decisions: How Can Physicians Do Better?
Barry
JAMA 1999;282:2356-2357.
FULL TEXT  

1999 Canadian recommendations for the management of hypertension
Feldman et al.
CMAJ 1999;161:S1-17.
ABSTRACT | FULL TEXT  

Breast Cancer Survivors' Perceptions of Complementary/Alternative Medicine (CAM): Making the Decision to Use or Not to Use
Boon et al.
Qual Health Res 1999;9:639-653.
ABSTRACT  

Evaluation of a Shared Decision Making Program for Women Suspected to Have a Genetic Predisposition to Breast Cancer: Preliminary Results
Stalmeier et al.
Med Decis Making 1999;19:230-241.
ABSTRACT  

A Randomized Controlled Trial of Shared Decision Making for Prostate Cancer Screening
Volk et al.
Arch Fam Med 1999;8:333-340.
ABSTRACT | FULL TEXT  

A Method for Evaluating Health Care Providers' Decision Making: The Provider Decision Process Assessment Instrument
Dolan
Med Decis Making 1999;19:38-41.
ABSTRACT  

Informing Patients: A Guide for Providing Patient Health Information
Tang and Newcomb
J. Am. Med. Inform. Assoc. 1998;5:563-570.
ABSTRACT | FULL TEXT  

Improving Health Care by Understanding Patient Preferences: The Role of Computer Technology
Brennan and Strombom
J. Am. Med. Inform. Assoc. 1998;5:257-262.
ABSTRACT | FULL TEXT  





HOME | CURRENT ISSUE | PAST ISSUES | TOPIC COLLECTIONS | CME | SUBMIT | SUBSCRIBE | HELP
CONDITIONS OF USE | PRIVACY POLICY | CONTACT US | SITE MAP
 
© 1996 American Medical Association. All Rights Reserved.